IT Service Status
External Data Management Resources
Below, please find links to general data management resources available on the web.
Data and Storage
Data Organization
Finding Data
Deidentification
- Guidance Regarding Methods for Deidentification of Protected Health Information in Accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule
- Deidentification of Medical Images with Retention of Scientific Research Value
- Deidentification in Medical Imaging
- Information on Deidentification of fMRI Data
Data Sharing
- Ten Simple Rules for Organizations to Support Research Data Sharing
- Ten Simple Rules for Improving Research Data Discovery
- The FAIR Guiding Principles for Scientific Data Management and Stewardship
- Desirable Characteristics of Data Repositories for Federally Funded Research
- NIH-supported Generalist Repositories
- FAIRSharing - A curated, informative, and educational resource on data and metadata standards, inter-related to databases and data policies
- re3data - A registry of research data repositories
- Biomedical Data: NIDDK Repository Selection Considerations Tool– A decision tool for selecting a repository to share biological or clinical data
Office of Science and Technology Policy Memos
- Increasing Access to the Results of Federally Funded Scientific Research (2013)
- Desirable Characteristics of Data Repositories for Federally Funded Research (2022)
- Ensuring Free, Immediate, and Equitable Access to Federally Funded Research (2022)
Publisher Policies
- Nature Portfolio: Reporting Standards and Availability of Data, Materials, Code, and Protocols
- Science Journals: Editorial Policies: Data and Materials Availability After Publication
- Public Library of Science (PLOS) Journals: Data Availability
- Proceedings of the National Academy of Sciences (PNAS) Editorial and Journal Policies
- Sage Journals Research Data Sharing Policies